Canadian Congenital Heart Alliance

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jennifer
November 1, 2023
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heart, congenital heart disease, heart disease, heart defect, congenital heart defect, heart surgery, open heart surgery,

Virtual Congenital Heart Choir

Are you a child living with congenital heart disease in Canada? Do you like to sing? Are you looking for something fun to do inside over the long Canadian Winter?

Why not join our CHD children's choir! Brought to you by musicians from the Virtual Heart Connection (VHC) in association with the Canadian Congenital Heart Alliance (CCHA), you will learn a medley of songs and sing together with other CHD kids.

Sessions will start with vocal warm-up exercises followed by learning the song. Participants will have an optional chat time with each other at the end...

News
jennifer
September 15, 2023
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heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease

FR

This week is Heart Valve Disease Awareness Week (Sept 11-17).

Many people living with CHD have defects that include the valves in their heart. The 4 valves of the heart are:

Tricuspid valve: between the right atrium and the right ventricle.

Pulmonary valve: between the right ventricle and the pulmonary artery.

Mitral valve: between the left atrium and the left ventricle.

Aortic valve: between the aorta and left ventricle.

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease source https://www.ottawaheart.ca/heart-condition/heart-valve-disease

Valve repair or replacement may be required to treat their CHD. Some types of replacement valves may...

News
jennifer
May 2, 2023
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heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease, cardiopathie congenitale

FR

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed...

News
jennifer
February 1, 2022
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heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

Happy Heart Month 2022 from the Canadian Congenital Heart Alliance (CCHA)!

This year our Heart Month campaign focuses on the number four - 4 chambers in the heart; 4 weeks in February; 4 values in our mission. We advocate for and enrich the lives of people with congenital heart disease (CHD) through awareness, education, research and support. And this month, we've got a line-up of engaging events and campaigns 4 you!

This month we will make announcements, introduce #hastag challenges, launch new resources, and host family activities and more. Stay tuned to see how we have #CanadaLitRed4CHD to...

News
jennifer
December 29, 2021
0
2021 support for families living with heart defects and congenital heart disease

 

CCHA is excited to look back at some of our accomplishments this year. These accomplishments wouldn't be possible without generous donations and support from our CHD community, we thank you from the bottom of our hearts.

See how your support helps us achieve our mission to advocate for and enrich the lives of people living with CHD through awareness, education, research and support for families living with heart defects.

Your support will help us continue to move forward with our mission – DONATE HERE

Advocacy

2021 House of Commons statement by Karen Vecchio (MP Elgin-London-Middlesex Deputy...

News
jennifer
February 23, 2021
0
Karen Vecchio MP reading statement for CHD Awareness Week in House of Commons virtually

 

#CHDAwarenessWeek may be over but we continue to work year-round to improve #CHD resources, support, and research.

Special appreciation goes to Karen Vecchio, Member of Parliament (Elgin-London-Middlesex) for her statement in the House of Commons recognizing Congenital Heart Disease Awareness Week (Feb 7-14) and supporting Canadian families living with Congenital Heart Disease.

Karen Vecchio, MP is Deputy House Leader of the Official Opposition.

https://fb.watch/3Qga8qeI42/

News
jennifer
February 6, 2021
0
Canadian flag

    City of Edmonton Proclaiming CHD Awareness Week  City of Calgary Proclaiming CHD Awareness Week  City of Chestermere Proclaiming CHD Awareness Week

Excited to see Alberta is leading the charge this year, proclaiming CHD Awareness Week in Edmonton, Calgary and Chestermere.

Thanks to our board member Jennifer M for submitting the requests. If you want to help us have even more cities across Canada proclaim CHD Awareness Week 2022, email us at info@cchaforlife.org to get involved!

 

Les villes canadiennes proclament la Semaine de sensibilisation aux cardiopathies congénitales

Je suis ravi de voir que l'Alberta mène la charge cette année, proclamant...

News
jennifer
February 6, 2021
0
CN Tower lit red

Iconic buildings all across Canada are lighting up red for CHD Awareness Week!

Feb 7 - High Level Bridge - Edmonton AB https://www.edmonton.ca/attractions_events/schedule_festivals_events/lig...

Feb 7 - BC Place - Vancouver BC  https://www.facebook.com/BCPlaceStadium/posts/5594016120624553

Feb 9 - Calgary Tower - Calgary AB  https://www.calgarytower.com/about/light-shows/lighting-schedules/

Feb 12-14 - London City Hall, JA Taylor building, Canada Life building and RBC Place Convention Centre - London ON

Feb 14 - CN Tower - Toronto ON https://www.cntower.ca/en-ca/home.html#earthcams

Feb...

News
jennifer
February 6, 2021
0
Images for family doing Trivia Night, children doing Scavenger Hunt and Person playing guitar for virtual concert

CCHA is thrilled to announce three exciting virtual events to raise CHD Awareness during Heart Month.

Congenital heart defects affect 1 in 100 births and is the most common birth defect. Congenital Heart Disease is a lifelong illness requiring specialized cardiac care.

VIRTUAL CONCERT

When:     Sunday February 28 at 7:00 - 8:30pm EST

Where:    Online event

Who:       4 talented musicians including Jake Ohanian, Russ Matthews, Tyler Mullendore

What:     Virtual Live concert. (to see our first concert visit https://www.cchaforlife.org/news/music-hearts-1-100-journey-virtual-concert)

Why:      To promote Congenital...

News
jennifer
January 27, 2021
0
Canadian Fontan Website and Registry
 
Welcome to your one stop shop for all things Fontan related, whether you are a health care provider or patient.
Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future. #CanadianFontan
 

The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!

https://canadianfontan.com/

To register for the 2023 Fontan Education Day on April 16,

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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