Canadian Congenital Heart Alliance

#CHDAdvocacy

News
jennifer
December 19, 2019
0
CCHA: A Case to Support the Heart

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The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).

CHD is  the most common birth defect, affecting 1 in 100 babies born worldwide.  CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...

Canadian Congenital Heart Alliance (CCHA) shares stories of Congenital Heart Disease (CHD) journeys with the CHD community. However, we also want to share and honour those who were lost too soon. We share these stories to help connect people and families with similar experiences, offer support, and emphasize the need for further research and awareness of CHD.

The tribute is shared on social media twice a year. Once at the end of Heart Month on February 28 and again later in the year.

By responding to this form you are consenting to CCHA using your story and photograph (if applicable) for...

CCHA logo

Date:       Tuesday June 22, 2021

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

 

2021 AGM Documents

2021 CCHA AGM presentation  PDF icon Download 2021 CCHA AGM Presentation_Final.pdf (1.82 MB)

2020 CCHA AGM minutes  PDF icon Download CCHA 2020 AGM Minutes - draft.pdf (101.11 KB)

2020 CCHA Financial Statements PDF icon Download Canadian Congential Heart Alliance Dec 2020 Financial Statements_signed.pdf (289.63 KB)

2021-2022 Board candidates  PDF icon Download 2021 CCHA Board.pdf (324.69 KB)

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Assemblée Générale Annuelle

Date:       mardi 22 juin 2021

Heure:     19 h...

News
jennifer
May 21, 2021
0
Applications for Board of Directors positions now open

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

Advocacy information for parents and adults with CHD

 

For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.

What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...

Canadian Congenital Heart Alliance logo

Date:       Wednesday June 24, 2020

Time:       8-9:30pm EDT

Where:    Virtual - videoconference and phone   

 

2020 AGM Documents

2020 CCHA AGM presentation  PDF icon Download 2020 CCHA AGM Presentation.pdf (1.04 MB)

2019 CCHA AGM minutes  PDF icon Download CCHA 2019 AGM minutes_draft.pdf (209.48 KB)

2019 CCHA Financial Statements  PDF icon Download Canadian Congential Heart Alliance Dec 2019 - Financial Statements - Final.pdf (228.93 KB)

2020-2021 Board of Directors  PDF icon Download 2020 CCHA Board of Directors_AGM.pdf (308.36 KB)

 

Assemblée Générale Annuelle

Date:       mecredi 24 juin 2020

Heure:     20 h à 21 h 30 HAE

Où:         visioconférence et téléphone...

COVID19 and CHD resources

 

Please feel free to share during this time of social distancing and stay-at-home orders

ACTIVITIES

Be sure to check your local library’s website, they usually have free resources and programs!

Bored at home? Here's a massive list of museums, zoos and theme parks offering virtual tours: https://www.goodhousekeeping.com/life/travel/a31784720/best-virtual-tour...

10 of the world’s best virtual museum and art gallery tours: https://www.theguardian.com/travel/2020/mar/23/10-of-the-worlds-best-virtual-museum-and-art- gallery-tours

New item added Best of Ireland - The 7 Best Virtual Tours to Take in Ireland: 

Stay home save lives COVID19

Image_by Grégory ROOSE from Pixabay(4983843_1280)

The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter.  For 7 weeks now Canadians having been living through this COVID-19 pandemic.  We are all living with heightened emotions, living life day to day, not knowing what tomorrow or next week is going to look like, unable to make plans for the future.  We are all dealing with emotions such as fear and anxiety due to uncertainty and stress about jobs, school, financial wellbeing, health...

News
jennifer
February 12, 2020
0
CHD Awareness Week in media

 

Jennifer Michaud - CCHA Board member shares her CHD story on the Marilyn Denis show.

https://www.marilyn.ca/Health/Articles/February2020/Filling-the-research-gap.

You can see her Heart and Stroke interview here

https://youtu.be/5CBy3zmjNAM

 

CTV2 London – Hearts of London/Middlesex chapter of CCHA with Chair Lisa Wright and Owen Gillet – Feb 11, 2020

Owen Gillet shares his CHD story of living with HLHS, diagnosed with a life-threatening congenital heart defect weeks before he was born, and he hopes his story of survival will help others.

The purpose of these transition recommendations is to support families understand the stages of Transition and support discussions with your CHD healthcare team.  Transition should be personalized for each individual, in accordance with their chronological age, developmental stage and abilities.  Active engagement in the transition process is vital for teens and young adults and families to prepare for a healthy life as an adult with CHD

Life Stages

Introduction to Health: Age 2-7 years old

Goal - Understanding their body

Transition preparation begins when your child is a toddler; coach them to...

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