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Canadian Congenital Heart Alliance

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Read our latest news and announcements.

Beat Retreat returns to CCHA

Exciting announcement from CCHA and Beat Retreat

The Canadian Congenital Heart Alliance (CCHA) and The Beat Retreat Congenital Heart Camp are proud to announce that they have once again joined forces to support and deliver “The Beat Retreat” camp.

This fun-filled four day event for adults living with congenital heart disease (CHD) will return as a program under the Canadian Congenital Heart Alliance known as the “The Beat Retreat”.

With the Beat Retreat returning as a program of CCHA, it will ensure continued financial support for the camp, allowing for stable and long term growth.  “We are...

Walk of Life 2020

 

Join Team CCHA in the 2020 Virtual Walk of Life! https://bit.ly/WOL2020TeamCCHA

The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE!  Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:

  • Awareness materials
  • Camps
  • Conferences
  • Education days 
  • Support initiatives such as Transition Programs, and more!

You will also be supporting...

Stay home save lives COVID19

 

The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. There has been a lot of chaos, confusion and misinformation over the 9+ weeks.

As provinces begin to ease restrictions for the COVID-19 pandemic, it's important to be aware that children and adults living with congenital heart disease (CHD) may be at higher risk for more severe symptoms and
complications.


Canadian Congenital Heart Alliance has created a COVID-19 and CHD tips page.  For important informations, Q&A, resources...

Join the movement - CHD Awareness
 
Be part of a growing movement to increase #CHD Awareness. Join CCHA in the fight!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram   @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
Congenital Heart Disease journal ceases publication

 

IMPORTANT INFORMATION FROM DR.DOUG MOODIE (EDITOR-IN-CHIEF) ABOUT THE DISCONTINUATION OF THE JOURNAL “CONGENITAL HEART DISEASE”

Congenital Heart Disease journal ceases publication

Send your feedback and let Wiley Blackwell publications know that this Journal is vital to the CHD professional community. 

On Social Media: @WileyNews

CHIP is funded by the community. Your donations and sponsorships help your community stay informed and connected.
 

 

Transitioning from pediatric to adult CHD care

We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!

General information about Transition and Risks: https://www.cchaforlife.org/transition 

Transition timeline recommendations: https://www.cchaforlife.org/transition-timeline-recommendations

Tools and Resources: https://www.cchaforlife.org/transition-tools-resources

 
In other news, CCHA collaborated...
CCHA: A Case to Support the Heart

Help CCHA deliver hope this season

Donate Now Through CanadaHelps.org!PayPal donation

The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).

CHD is  the most common birth defect, affecting 1 in 100 babies born worldwide.  CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...

CHD Awareness Week in media

 

Jennifer Michaud - CCHA Board member shares her CHD story on the Marilyn Denis show.

https://www.marilyn.ca/Health/Articles/February2020/Filling-the-research-gap.

You can see her Heart and Stroke interview here

https://youtu.be/5CBy3zmjNAM

 

CTV2 London – Hearts of London/Middlesex chapter of CCHA with Chair Lisa Wright and Owen Gillet – Feb 11, 2020

Owen Gillet shares his CHD story of living with HLHS, diagnosed with a life-threatening congenital heart defect weeks before he was born, and he hopes his story of survival will help others.

Take our survey

We want to hear from you!

We are looking for feedback from teens, young adults and adults and their families about their experiences - past or current in transitioning from pediatric to adult CHD care. 

Below is a link to a brief survey (5 min) to tell us about your experiences.  We wil use your feedback to create educational materials and resources.  We look forward to hearing from you!

Create your own user feedback survey

https://www.surveymonkey.com/r/5QQHRHY

 

 

75th Anniversary of 'blue baby' surgery

Today we celebrate 75 years since the first "blue baby" surgery by Alfred Blalock, with Helen Taussig and Vivien Thomas on November 29, 1944.

Picture of Dr. Alfred Blalock, Helen Taussig and Vivien Thomas

The child was 15-month-old, Eileen Saxon, the surgery was a success and she went home after 3 months.  Unfortunately her cynotic episodes returned and 2 days before her 2nd birthday, she underwent another operation, she passed away 5 days later.

Now known as the BT or BTT shunt, the surgery was a success and really the start of #CHD surgery.  We have come a long way since then, with an almost 95% survival rate into adulthood now. 

Between 1947 and...

MP Marilyn Gladu recognizes February 14th as CHD Awareness Day in Statement in House of Commons

 

Thank you to Marilyn Gladu, MP for supporting Congenital Heart Disease (CHD) awareness in Canada and Canadian Congenital Heart Alliance.

By reading your statement in the House of Commons today and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada, you help increase awareness and advocacy for the more than 250,000 Canadians living with Congenital Heart Disease, many who require lifelong specialized care.

Marilyn Gladu is the MP for Sarnia-Lambton and serves as the Shadow Minister for Health in the Official Opposition

2019 Faces of CHD campaign

During Heart Month 2019, we highlighted CHD stories of our members from across Canada. Thank to everyone for their stories of strength, perseverance and hope and for sharing their experience with the community of CCHA and anyone who has been touched by Congenital Heart Disease.

 

Meaghan S' story  Meaghan S' Faces of CHD story  PDF iconDownload Meaghan S_Faces of CHD story.pdf (76.53 KB)

 

Rita F's story  Rita's Faces of CHD story  PDF iconDownload Rita F_Faces of CHD story.pdf (72.09 KB)

 

Michelle K's story Faces of CHD Michelle's story   PDF iconDownload Michelle K_Faces of CHD story.pdf (1.02 MB)

Amanda C's story CCHA Faces of CHD in Canada - Amanda  PDF iconDownload Amanda C_Faces of CHD story.pdf (837.88 KB)

Shelley C's...

Invested Influenza ACHD trial

Study testing high-dose influenza vaccine in high-risk ACHD patients.

A North American INVESTED study will test the hypothesis that high dose trivalent influenza vaccine will reduce cardiopulmonary events to a greater extent than standard dose quadrivalent influenza vaccine in high-risk cardiovascular patients with a recent history of myocardial infarction or heart failure.  An ACHD sub-study will investigate the effects on ACHD population.

Eligibility Criteria

INVESTED eligibility criteria

Already received the influenza vaccine this year, you are not eligible to participate this year.  However, you can still contact the...

Here is a sneak peek at the upcoming collaborative article on medical treatment and care of adults with Congenital Heart Disease in Canada.  Thrilled to be part of this great collaborative research team lead by Dr. Jennifer Lapum at Ryerson University; and included Dr. Suzanne Fredericks also at Ryerson University, Barbara Bailey and Dr. Terrence Yau at Peter Munk Cardiac Centre, Dr. Ariane Marelli at McGill University Health Centre and our own Jennifer Graham at Canadian Congenital Heart Alliance. 

http://bit.ly/2PDQ6Xs

Looking forward to the full article to be published in journal Congenital...

CCHA Named Feature Charity of the Month

We are honoured to be named feature charity of the month by First Edition First Aid Training!

Thank you for recognizing our organization and the hard work we do to support children and adults in Canada living with congenital heart disease #CHD through education, research and advocacy.  Your recognition helps to shine a spotlight on Congenital Heart Disease and increase CHD awareness.

To read the full article visit:  http://bit.ly/2Km34Dm

Major milestone in the genetic research for CHD.

 

Toronto (September 20, 2018) – In a remarkable new genetic discovery, researchers at the Peter Munk Cardiac Centre, University Health Network (UHN), Ted Rogers Centre for Heart Research and The Hospital for Sick Children (SickKids) have found strong evidence that rare DNA variations can lead to Tetralogy of Fallot (ToF).

Published in Genetics in Medicine, ...

To read the full article https://www.uhn.ca/corporate/News/PressReleases/Pages/pioneering_genome_...

Organ donations help save lives.
 
“Every week 5 Canadians die while waiting for a transplant. Yet, a single donor can save up to 8 lives through their organs, and save or heal more than 100 lives through tissue donation.”
 
Click the link below for more details on how you can help change organ registration system and help save lives.
 
To register for organ donation or for more information, visit https://www.canada.ca/en/public-health/services/healthy-living/blood-organ-tissue-donation.html#a2 and select your...

Have you heard of the Great Canadian Giving Challenge? It is a national public contest to benefit any registered Canadian charity. Every $1 donated to a registered charity in June, automatically enters the charity to win an additional $10,000 donation. The grand prize draw is on Canada Day and one lucky charity will receive the grand prize of $10,000. 

Donate Here

Did the Great Canadian Giving Challenge make a difference last year? In 2017, the third annual Great Canadian Giving Challenge, 77,785 Canadians participated, donating almost $10 million to over 10,000 charities, representing an...

 

AGM documents and attendance details are available on CCHA website.

Find info at https://www.cchaforlife.org/2018-agm

 

JOIN TEAM CCHA IN THE 2018 WALK OF LIFE®

Join or Donate to Team CCHA: https://secure.e2rm.com/registrant/TeamFundraisingPage.aspx?teamID=79750...

 

Saturday, May 26, 2018 8:00 am - 12:00 pm

Ontario Science Centre, 770 Don Mills Road & E.T. Seton Park (Sunnybrook Parkland)

FREE Parking, T-Shirt, snacks, beverages and BBQ, bouncy castles

Free registration for kids under 14

*** This year Team CCHA will have our own personalized T-shirts. Be sure to pick them up when you register!

 

Host: Roger Petersen

Mascots: PAW PATROL

Musical Entertainment: Andy B. and the Honey Tones

 

SCHEDULE OF EVENTS...

 

TRASE study: Young adults (15-30 yo) with #CHD or parents of young adults with CHD needed for transition readiness study!
Contact TRASE.Study@childrens.harvard.edu Open to

 

 

 

Tamarack Ottawa Race Weekend in support of CCHA

Saturday, May 26 at 2 PM - 7 PM
Downtown Ottawa


 

CCHA will have a team participating and fundraising. There is a 2km, 5km, 10km, half marathon and full marathon
option.

Join our teamhttps://secure.e2rm.com/registrant/EventHome.aspx?eventid=226965&langpre...

Donate to our teamhttps://secure.e2rm.com/registrant/FundraisingPage.aspx?registrationID=4012085&langPref=en-CA#&panel1-1

 

We will also have a booth at the Health and Fitness Expo which runs Thursday-Saturday.

Volunteer: contact Jennifer at...

The Agenda on TVOThe Agenda on TVO

*photo from TheAgenda/TVO website/Liane Kotler-Producer

 

TVO Interview: https://tvo.org/video/programs/the-agenda-with-steve-paikin/congenital-c...

Do you know what the # 1 birth defect is in Canada? Congenital heart disease (CHD).

On Tuesday, February 27 on ‘The Agenda’ - TV Ontario, there was a panel discussion focusing on congenital heart disease. Viewers heard more about the #1 birth defect - which affects about 1/100 births. Guests included

Dr. Erwin N. Oechslin, director at the Congenital Cardiac Centre for Adults located at the Peter Munk Cardiac Centre, University Health Network...

 

CCHA's Insurance Broker Nick Godfrey has a new blog discussing non-medical life insurance for those living with CHD. Check it out http://deniedlifeinsurance.ca/congenital-heart-defects-and-life-insurance-for-adults/

 

For more information about insurance with CHD or to contact Nick, visit our Insurance page

By Sarah Trainor, CBC

"Thrown into the strange, scary world of critically sick children, heart parents become fierce advocates for awareness." Thanks to Sarah Trainor of CBC for sharing her family's story of their son Ellis' journey with CHD. Ellis' story touches on so many issues that CHD patients and their families face, including the importance of maternal screening for heart defects, the challenges of relocating to seek life-saving medical treatment, and the incredible roles that parents play as caregivers and advocates for their children.

A great piece for generating awareness during...

Congratulations to Nova Scotia for being the first province to declare February 7 - 14th Congenital Heart Disease Awareness Week! Way to go!

Big thanks @Brave_HeartSS @yarrowgillis @BrigadonTweets @IWKHealthCentre and everyone involved to raise awareness for CHD and make this happen.

 

 

Thank you to Marilyn Gladu, MP (Sarnia_Lambton, ON Opposition Health Critic) for reading our statement in the House of Commons and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada.

 

https://www.facebook.com/MPMarilynGladu/videos/920094518165380/

#1in100

Hey Canada.

CCHA is challenging you to find your 1 in 100 Champion!

Share your video, picture or story of your 1 in 100 Champion on social media to help raise awareness for Congenital Heart Disease #CHD. Tag us in your post @cchaforlife on Facebook, Twitter or Instagram using the hashtags #1in100, #CHD, #CCHA.  Not on social media - no problem. You can still share your 1 in 100 Champion video, picture or story by emailing them to us at...

The presentation from the 2017 AGM is now posted.

Click the link below for details.

http://www.cchaforlife.org/2017-agm

Board of Directors - Positions available

Interested in supporting children and adults with CHD across Canada, apply for a position on our Board of Directors

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the...

Health records

Toronto Star reporter Kristin Rushowy shining the spotlight on issue of medical records retention, a growing problem for Canadians living with CHD who had surgery as a child.

https://www.thestar.com/news/queenspark/2017/07/28/medical-records-of-sick-kids-should-be-kept-for-life-group-urges.html

 

The Canadian Congenital Heart Alliance (CCHA) partnered with the CHEO's HALO Research Institute and recreational facilities in your local community to deliver Fearless Physical Activity events for children, teens, and adults living with congenital heart disease (CHD) held across Ontario in 2017.

Interested in Fearless Physical Activity? Check out our resources here Fearless Physical Activity

 

Funding provided through a grant from the Ontario Ministry of Tourism, Culture and Sport

 

Province the first in Canada to offer screening to all healthy babies  By Jennifer Chevalier, CBC News. Photo Jean Delisle/CBC

 

The announcement that Pulse Oximetry Newborn Screening is coming to Ontario is amazing news for early detection of babies born with Critical Congenital Heart Defects (CCHD).

This program will help catch upwards of 150 babies a year born with Congenital Heart Disease (CHD) but who currently leave the hospital undiagnosed. “Early detection and treatment of CHD is critical in ensuring the best possible long-term quality of life for individuals that will live with this life-long disease" stated Krista Vriend, President of the Canadian Congenital Heart Alliance (CCHA). "Leadership and progress on...

Very exciting, CCHA's Fearless Physical Activity program in partnership with CHEO is featured on CTV Ottawa!

Check out the video: http://ottawa.ctvnews.ca/video?binId=1.1166252 

CHEO has a Cardiology Approved Camp at the YMCA August 14th to 18th. Deadline registeration is April 30th

Contact Angekica Blais for more information e-mail: ablais@cheo.on.ca

Phone: 613-737-7600 ext: 4191

PDF icon Download Camp poster 2017.pdf (24.46 MB)

CHEO has a Cardiology Approved Camp at the YMCA August 14th to 18th. Deadline registeration is April 30thPDF icon Download Camp poster 2017.pdf (24.46 MB)

Jennifer Graham - Vice President, Interim President

Jennifer Graham was born with a CHD - congenitally corrected transposition of the great arteries (ccTGA). Jennifer has been a part of CCHA since 2006.  She graduated from Carleton University with a B.Sc Hon in Biology and Psychology.  During her career she has held various positions including Project Manager, Computer System designer and developer, Process Re-engineering Analyst and National Trainer in the Insurance and Pharmaceutical industries.

While part of the CCHA team, she has helped organize events fundraising and social events as well...

Date: November 29, 2016 - 7:30-9:00 PM EST

Thank you to everyone who attended our 2016 Annual General Meeting.

Documents
 
2016 AGM presentation
2015 Audtied Financial Statments

PDF icon Download 2015 Audited Financial Statements.pdf (3.52 MB)

CCHA AGM Minutes 2015

PDF icon Download CCHA_AGM_Minutes_2015.pdf (94.47 KB)

Board Members 2016-2019

Download Board members 2016-2017.pdf (83.63 KB)

Survey Invitation for New CHD “Fearless Physical Activity” Events

 

CCHA wants to hear your ideas for our “Fearless Physical Activity” events!

 

CCHA needs your help to design physical activity events specifically geared towards children, youth and adults with CHD.

In order for CCHA to make these “Fearless” events as helpful and successful as possible, you are invited to complete a very brief survey asking for your opinion on the design of these events. What activities would interest you? When and for how long would you want to participate?

 

The survey will take only 5 minutes. Click on the link...

Fearless Physical Activity - Getting and Keeping Ontarians with Congenital Heart Disease Active in Community Sport, Recreation and Physical Activity

View the attachment for more informationPDF icon Download Graduate Student Internship Available - MSc or PhD position Fearless.pdf (194.64 KB)

CCHA_Logo2registered

Board of Directors positions available!

View the attachment for more information

PDF icon Download Board of Directors Positions Available.pdf (444.23 KB)

 

'Fearless' Physical Activity

The Canadian Congenital Heart Alliance (CCHA) is thrilled to announce they are the successful recipients of a grant from the Ontario Ministry of Tourism, Culture and Sport. This grant will fund a comprehensive, ground-breaking two-year study – ‘Fearless Physical Activity’ - to support the delivery of high-quality, meaningful physical activities for children, youth and adults with congenital heart disease (CHD) and their families.

Thanks to an Ontario Sport and Recreation Communities Fund grant of $186,934, this unique project, in collaboration with Dr. Pat Longmuir of the Healthy Active...

Check out the Target Practice Book website of Chris Dyson who is a goaltending instructor, author and friend of the CCHA. It makes a great stocking stuffer for the holidays!

Be a great Canadian and help support the CCHA, by participating in The Great Canadian Giving Challenge

Follow the link to donate 

https://www.canadahelps.org/gcgc/97015

Dear Patients and Families,
 
Thank you for spending the day with us for our inaugural ‘Unique Hearts, Unique Lives’ patient education day on May 7. We very much enjoyed meeting many of you and we hope that this is just the first of many future events to come.
 
Many of you requested the presentations from the event and we are happy to announce that the power point presentations can now be found on the Providence Slideshare site at:
 
 
And all of all the tweets + photos from the day can be found at:
 

CCHA president, Eric Gonneau, and long time member Lori Constable-Smolcic jointly gave a lecture to University of Toronto Nursing Students on April 13th, 2016.  The presentation, titled “When Cute Kids Grow Up” explained in detail from a patients perspective life with Congenital Heart Defect, especially as an adult.  Students were also introduced to CCHA and explored the implications on the health care system of adding more CHD Adult patients every year.  Numerous questions filled all the available time.  

The 2016 Beat Retreat camp information is now available! To find out more about the camp and to print the application and medical forms please click HERE.

Adults with congenital heart disease (ACHD) may be at increased risk for post-traumatic stress disorder (PTSD), new research suggests...

To read the article please click HERE

Congratulations to Dr. Gary Webb for being awarded a Lifetime Achievement Award from the International Society for Congenital Heart Disease!

Beginning in 1980, Dr. Webb was codirector, and then director of the Toronto Congenital Cardiac Center for Adults, the first such ACHD clinic in the world. He was the founding president of the Canadian Adult Congenital Heart Network, and he was the founding president of the International Society for Adult Congenital Heart Disease.

To read the announcement please click HERE.

 

Adults with congenital heart defects at considerably higher risk of stroke 

Wednesday, 25 Nov 2015 12:31 

A study published in Circulation has shown adults with congenital heart defects to have much higher rates of stroke, compared to the general population.

The researchers from McGill University, Montreal, Quebec, Canada analysed stroke data on 19,638 congenital heart disease patients between the ages of 18 and 64, and compared them with that of the general population of Quebec, Canada. Their aim was to find the frequency, risk and strongest predictors of stroke.

Their results include:

  • Stroke...

7th annual Beat Retreat brings adult CHD patients and professionals together

What has 36 hearts, 72 legs, and more enthusiasm than you can shake a stick at? Give up? The Canadian Congenital Heart Alliance’s 7th annual Beat Retreat, held September 17-20, 2015.

The Beat Retreat is a fun-filled, four-day annual event for adults with congenital heart disease (ACHD).  This year’s retreat – the biggest to date – drew together 27 adult congenital heart disease (CHD) patients, two caregivers, and seven health care professionals from Southern Ontario, Quebec and even Alberta.

While at camp, attendees...

Would you like to create a wallet-size health passport in case of emergency? You can now use the SickKids MyHealth Passport to create a CHD-specific form with all of your pertinent health and contact information. Just click HERE and use the drop-dow menu to select "Congenital heart disease" and then fill out the information and keep it in your wallet or purse.

Middle-aged congenital heart disease survivors may need special care 

American Heart Association Scientific Statement 

 

Statement Highlight

  • For the first time, the American Heart Association has made recommendations for treating people older than 40 with congenital heart disease.

Embargoed until 3 p.m. CT/4 p.m. ET Monday, April 20, 2015 

DALLAS, April 20, 2015 — For the first time, the American Heart Association has issued recommendations for healthcare providers treating people older than 40 with congenital heart disease.

“People born with congenital heart disease are living longer and fuller...

A Prescription for Change – Making Affordable Medicine a Priority

by Alison Lawton

When we launched the Access Our Medicine Initiative on World Health Day last year I didn’t know if anyone would respond.

We knew that the price of medicine was rising for life-changing medicines with devastating consequences for everyone, around the globe. We learned of people choosing between food and medicine, being pushed into poverty and even dying because they couldn’t afford medicine they needed.

But I also knew that for many people the issue of access to affordable medicine just isn’t top of mind until...

The British Heart Foundation has released figures that reveal a huge 83% drop in the number of children dying from congenital heart disease. News story from Australia’s The Reporter:

FIXING a child’s heart is one the most intricate operations that the NHS performs.

Surgeons who do it must operate on tiny babies whose hearts are hardly bigger than walnuts and whose veins are little more than a hair’s breadth across.

But despite the intricacy, it is something that surgeons, and in particular NHS surgeons, have quietly been getting better at for decades.

Today the British Heart Foundation has...

March 7, 2013

Boston, MA - The annual number of hospitalizations for congenital heart disease among US adults increased more rapidly than hospitalizations among children over a recent 12-year period, new research shows [1]. Between 1998 and 2010, the frequency of hospitalizations among adults admitted for congenital defects has grown twice as fast as that for children, according to the new report.

As a result, annual adult admissions are approaching those of children, with adults now accounting for 36.5% of all congenital heart defect admissions. “The observed trend is likely due to a number...

HIS IS A MOMENTOUS ANNOUNCEMENT:

The American Board of Medical Specialties (ABS) announced the creation of physician certification in ACHD on December 5, 2012. The announcement of an ACHD subspecialty certification in the US nails ACHD down as an equal partner among other subspecialties. This decision is a landmark and a milestone in the young history of ACHD and transitions ACHD into a new era!

This announcement is available at http://www.cardiosource.org/News-Media/Publications/Cardiology-Magazine/...

This new ACHD subspecialty acknowledges efforts from multi-society stakeholders including...

This article was posted on the theheart.org website on December 4, 2012.

Cincinnati, OH – Children and adolescents with pacemakers and implantable cardiac defibrillators (ICDs)—and their parents—suffer from a poorer quality of life than both healthy children and patients with mild forms of congenital heart disease, a new study reveals [1]. Whether lives could be improved with the use of psychotherapy needs to be assessed in this population, say Dr Richard J Czosek (Cincinnati Children’s Hospital Medical Center, OH) and colleagues in their paper published online December 4, 2012 in...

Are you an adult with congenital heart diseases? To find a cardiologist with specialized training in adult congenital heart disease, please read for important info.

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